Sharing brain imaging data in the Open Science era: how and why?

By Kathrin Giehl, PhD ∙ Henk-Jan Mutsaerts, PhD ∙ Kristien Aarts, PhD ∙ Prof Frederik Barkhof, MD ∙ Prof Svenja Caspers, PhDd ∙ Gaël Chetelat, PhD ∙ Marie-Elisabeth Colin, MSc ∙ Prof Emrah Düzel, MD ∙ Prof Giovanni B Frisoni, MD ∙ Prof M Arfan Ikram, PhD ∙ Prof Jorge Jovicich, PhD ∙ Prof Silvia Morbelli, PhD, ∙ Prof Wolfgang Oertel, MD ∙ Christian Paret, PhD ∙ Prof Daniela Perani, MD ∙ Prof Petra Ritter, PhD ∙ Bàrbara Segura, PhD∙ Laura E M Wisse, PhD ∙ Elke De Witte, PhD ∙ Prof Stefano F Cappa, MD∙ Prof Thilo van Eimeren, MD.

Brain Imaging Data Sharing

Abstract

The sharing of human neuroimaging data has great potential to accelerate the development of imaging biomarkers in neurological and psychiatric disorders; however, major obstacles remain in terms of how and why to share data in the Open Science context. In this Health Policy by the European Cluster for Imaging Biomarkers, we outline the current main opportunities and challenges based on the results of an online survey disseminated among senior scientists in the field. Although the scientific community fully recognises the importance of data sharing, technical, legal, and motivational aspects often prevent active adoption. Therefore, we provide practical advice on how to overcome the technical barriers. We also call for a harmonised application of the General Data Protection Regulation across EU countries. Finally, we suggest the development of a system that makes data count by recognising the generation and sharing of data as a highly valuable contribution to the community.

Link to resource: https://doi.org/10.1016/S2589-7500(24)00069-4

Type of resources: Reading

Education level(s): College / Upper Division (Undergraduates), Graduate / Professional

Primary user(s): Student, Teacher

Subject area(s): Life Science, Social Science

Language(s): English