Open Data and Materials

 

Exploring regulatory flexibility to create novel incentives to optimize drug discovery

Efforts by governments, firms, and patients to deliver pioneering drugs for critical health needs face a challenge of diminishing efficiency in developing those medicines. While multi-sectoral collaborations involving firms, researchers, patients, …

Making Research Data Publicly Accessible: Estimates of Institutional & Researcher Expenses

Academic institutions have made significant investments to support public access to research data requirements, yet little to no data about these services, infrastructure, and costs currently exist or are widely shared. For public access to research …

Processes and Lessons Learned in Establishing the Palliative Care Research Cooperative’s Qualitative Data Repository in Serious Illness and Palliative Care

Data sharing is increasingly an expectation in health research since implementation of the National Institutes of Health Data Management and Sharing Policy. Qualitative studies are not exempt from this data sharing requirement. Recognizing this …

The O3 guidelines: open data, open code, and open infrastructure for sustainable curated scientific resources

Curated resources that support scientific research often go out of date or become inaccessible. This can happen for several reasons including lack of continuing funding, the departure of key personnel, or changes in institutional priorities. We …

Biden-⁠Harris Administration Marks the Anniversary of OSTP’s Year of Open Science

One year ago, the White House Office of Science and Technology Policy (OSTP) launched a Year of Open Science, announcing actions across the federal government to advance open, equitable, and secure research. Throughout 2023, federal agencies engaged …

Canadian Open Neuroscience Platform (CONP) Portal

The Canadian Open Neuroscience Platform (CONP) provides an infrastructure for the promotion of open-science workflows and the sharing of neuroscience data. This platform brings together many of the country’s leading scientists in basic and clinical …

Cancer researchers’ experiences with and perceptions of research data sharing: Results of a cross-sectional survey

Background: Despite wide recognition of the benefits of sharing research data, public availability rates have not increased substantially in oncology or medicine more broadly over the last decade. Methods: We surveyed 285 cancer researchers to …

CARE Principles for Indigenous Data Governance

The current movement toward open data and open science does not fully engage with Indigenous Peoples rights and interests. Existing principles within the open data movement (e.g. FAIR: findable, accessible, interoperable, reusable) primarily focus on …

CrustyBase v.2.0: new features and enhanced utilities to support open science

Background Transcriptomes present a rich, multi-dimensional subset of genomics data. They provide broad insights into genetic sequence, and more significantly gene expression, across biological samples. This technology is frequently employed for …

Decolonising Open Science Symposium: Dismantling Global Hierarchies of Knowledge

Despite the progressive efforts of the Open Science movement to produce more internationally inclusive models of research and education, the Global North is still widely perceived as the center of knowledge, with countries from the Global South at …
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