参与式研究 [Participatory Research]

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定义: 参与式研究是指在整个研究过程中纳入相关社区成员的观点，以实现研究者和社区的共同目标。这种方法强调合作，通过“系统性共同创造新知识”（Andersson, 2018），以减少研究者与被研究者的权力不平衡。

相关术语: Collaborative research, Inclusion, Neurodiversity, Patient and Public Involvement (PPI), Transformative paradigm

参考文献:

  • Cornwall, A., & Jewkes, R. (1995). What is participatory research? Social Science & Medicine, 41(12), 1667–1676. https://doi.org/10.1016/0277-9536(95)00127-S
  • Fletcher-Watson, S., Adams, J., Brook, K., Charman, T., Crane, L., Cusack, J., Leekam, S., Milton, D., Parr, J. R., & Pellicano, E. (2019). Making the Future Together: Shaping Autism Research Through Meaningful Participation. Autism, 23(4), 943–953.
  • Kiernan, C. (1999). Participation in research by people with learning disability: Origins and issues. British Journal of Learning Disabilities, 27(2), 43–47. https://doi.org/10.1111/j.1468-3156.1999.tb00084.x
  • Leavy, P. (2017). Research Design: Quantitative, Qualitative, Mixed Methods, Arts-Based, and Community-Based Participatory Research Approaches. The Guilford Press.
  • Ottmann, G., Laragy, C., Allen, J., & Feldman, P. (2011). Coproduction in practice: Participatory action research to develop a model of community aged care. Systemic Practice and Action Research, 24, 413–427. https://doi.org/10.1007/s11213-011-9192-x
  • Rose, D. (2018). Participatory research: Real or imagined. Social Psychiatry and Psychiatric Epidemiology, 53, 765–771. https://doi.org/10.1007/s00127-018-1549-3

原稿作者: Tamara Kalandadze

审阅者: Jamie P. Cockcroft, Bethan Iley, Halil E. Kocalar, Michele C. Lim

翻译者: AI-driven translation tool "TransFlow" (developed by Jinbiao Yang and COSN OpenTransfer team)

译稿审阅者: Zixi Wang, Liangjie Chen, Ruoting Liu, Shuxian Jin