参与者和公众参与 [Patient and Public Involvement (PPI)]

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定义: 积极与目标人群携手合作开展研究，而不是单方面研究他们。研究人员能够在研究的各个阶段引入参与者和公众的生活经验和专业知识。比如，请研究参与者协助制定研究问题，评估研究设计的合理性，批准用于资助/伦理申请和传播的简明英文摘要，参与数据收集和分析，甚至协助撰写发表的项目报告。这种做法正逐渐成为资助者强烈推荐甚至要求的做法（Boivin et al., 2018）。

相关术语: Co-production, Participatory research

参考文献:

  • Boivin, A., Richards, T., Forsythe, L., Gregoire, A., L’Esperance, A., Abelson, J., & Carman, K. L. (2018). Evaluating the patient and public involvement in research. British Medical Journal, 363, k5147. https://doi.org/10.1136/bmj.k5147
  • INVOLVE. (n.d.). INVOLVE – Supporting public involvement in NHS, public health and social care research. https://www.invo.org.uk/

原稿作者: Jade Pickering

审阅者: Mahmoud Elsherif, Sam Parsons, Catia M. Oliveira

翻译者: AI-driven translation tool "TransFlow" (developed by Jinbiao Yang and COSN OpenTransfer team)

译稿审阅者: Zixi Wang, Liangjie Chen, Ruoting Liu, Shuxian Jin