Participatory Research

Definition: Participatory research refers to incorporating the views of people from relevant communities in the entire research process to achieve shared goals between researchers and the communities. This approach takes a collaborative stance that seeks to reduce the power imbalance between the researcher and those researched through a “systematic cocreation of new knowledge” (Andersson, 2018).

Related terms: C ollaborative research, Inclusion, Neurodiversity, Patient and Public Involvement (PPI), Transformative paradigm

Reference: Cornwall and Jewkes (1995); Fletcher-Watson et al. (2019); Kiernan (1999 ); Leavy (2017); Ottmann et al. (2011); Rose (2018)

Drafted and Reviewed by: Tamara Kalandadze, Jamie P. Cockcroft, Bethan Iley , Halil E. Kocalar, Michele C. Lim

We are currently working to link the references directly. For now, the complete reference list can be viewed here.