Pseudonymisation
Definition: Pseudonymisation refers to a technique that involves replacing or removing any information that could lead to identification of research subjects’ identity whilst still being able to make them identifiable through the use of the combination of code number and identifiers. This process comprises the following steps: removal of all identifiers from the research dataset; attribution of a specific identifier (pseudonym) for each participant and using it to label each research record; and maintenance of a cipher that links the code number to the participant in a document physically separate from the dataset. Pseudonymisation is typically a minimum requirement from ethical committees when conducting research, especially on human participants or involving confidential information, in order to ensure upholding of data privacy.
Related terms: Anonymity, Confidentiality, Data privacy, De-identification, Pseudonymisation, Research ethics
References:
- Mourby, M., Mackey, E., Elliot, M., Gowans, H., Wallace, S. E., Bell, J., Smith, H., Aidinlis, S., & Kaye, J. (2018). Are ‘pseudonymised’ data always personal data? Implications of the GDPR for administrative data research in the UK. Computer Law & Security Review, 34(2), 222–233. https://doi.org/10.1016/j.clsr.2018.01.002
- Medical Research Council. (2019). Identifiability, anonymisation and pseudonymisation. Medical Research Council. https://mrc.ukri.org/documents/pdf/gdpr-guidance-note-5-identifiability-anonymisation-and-pseudonymisation/
Originally drafted by: Catia M. Oliveira
Reviewed by: Helena Hartmann, Sam Parsons, Charlotte R. Pennington, Birgit Schmidt