Participatory Research

Definition: Participatory research refers to incorporating the views of people from relevant communities in the entire research process to achieve shared goals between researchers and the communities. This approach takes a collaborative stance that seeks to reduce the power imbalance between the researcher and those researched through a “systematic cocreation of new knowledge” (Andersson, 2018).

Related terms: Collaborative research, Inclusion, Neurodiversity, Patient and Public Involvement (PPI), Transformative paradigm

References: Cornwall and Jewkes (1995), Fletcher-Watson et al. (2019), Kiernan (1999), Leavy (2017), Ottmann et al. (2011), & Rose (2018)

Drafted and Reviewed by: Tamara Kalandadze, Jamie P. Cockcroft, Bethan Iley, Halil E. Kocalar, Michele C. Lim

Note that we are currently working on an automated mechanism to link references cited above with their full-length version that can be found at with all references used so far.