List of terms

    Participatory Research

    Definition

    Participatory research refers to incorporating the views of people from relevant communities in the entire research process to achieve shared goals between researchers and the communities. This approach takes a collaborative stance that seeks to reduce the power imbalance between the researcher and those researched through a “systematic cocreation of new knowledge” (Andersson, 2018).

    References:

    • Cornwall, A., & Jewkes, R. (1995). What is participatory research? Social Science & Medicine, 41(12), 1667–1676. https://doi.org/10.1016/0277-9536(95)00127-S
    • Fletcher-Watson, S., Adams, J., Brook, K., et al. (2019). Making the Future Together: Shaping Autism Research Through Meaningful Participation. Autism, 23(4), 943–953.
    • Kiernan, C. (1999). Participation in research by people with learning disability: Origins and issues. British Journal of Learning Disabilities, 27(2), 43–47. https://doi.org/10.1111/j.1468-3156.1999.tb00084.x
    • Leavy, P. (2017). Research Design: Quantitative, Qualitative, Mixed Methods, Arts-Based, and Community-Based Participatory Research Approaches. The Guilford Press.
    • Ottmann, G., Laragy, C., Allen, J., & Feldman, P. (2011). Coproduction in practice: Participatory action research to develop a model of community aged care. Systemic Practice and Action Research, 24, 413–427. https://doi.org/10.1007/s11213-011-9192-x
    • Rose, D. (2018). Participatory research: Real or imagined. Social Psychiatry and Psychiatric Epidemiology, 53, 765–771. https://doi.org/10.1007/s00127-018-1549-3

    Originally drafted by: Tamara Kalandadze

    Reviewed by: Jamie P. Cockcroft, Bethan Iley, Halil E. Kocalar, Michele C. Lim

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