Data Sharing

 

A Guide to Choosing a Data Repository for NIH-Funded Research

The National Institutes of Health (NIH) prefers data to be shared via a data repository. This article provides a guide to data repositories and an algorithm for choosing where to deposit your data.

A Plan to Develop Open Science’s Green Shoots into a Thriving Garden

Over the past several decades, the movement for open science, which promises a more inclusive, efficient, and trustworthy way of conducting and disseminating scientific research, has grown. Driven by the belief that openly sharing knowledge in all …

Making Research Data Publicly Accessible: Estimates of Institutional & Researcher Expenses

Academic institutions have made significant investments to support public access to research data requirements, yet little to no data about these services, infrastructure, and costs currently exist or are widely shared. For public access to research …

Processes and Lessons Learned in Establishing the Palliative Care Research Cooperative’s Qualitative Data Repository in Serious Illness and Palliative Care

Data sharing is increasingly an expectation in health research since implementation of the National Institutes of Health Data Management and Sharing Policy. Qualitative studies are not exempt from this data sharing requirement. Recognizing this …

Canadian Open Neuroscience Platform (CONP) Portal

The Canadian Open Neuroscience Platform (CONP) provides an infrastructure for the promotion of open-science workflows and the sharing of neuroscience data. This platform brings together many of the country’s leading scientists in basic and clinical …

Cancer researchers’ experiences with and perceptions of research data sharing: Results of a cross-sectional survey

Background: Despite wide recognition of the benefits of sharing research data, public availability rates have not increased substantially in oncology or medicine more broadly over the last decade. Methods: We surveyed 285 cancer researchers to …

CARE Principles for Indigenous Data Governance

The current movement toward open data and open science does not fully engage with Indigenous Peoples rights and interests. Existing principles within the open data movement (e.g. FAIR: findable, accessible, interoperable, reusable) primarily focus on …

Open Data Governance at the Canadian Open Neuroscience Platform (CONP): From the Walled Garden to the Arboretum

Scientific research communities pursue dual imperatives in implementing strategies to share their data. These communities attempt to maximize the accessibility of biomedical data for downstream research use, in furtherance of open science objectives. …

Applying Social and Behavioral Science to Federal Policies and Programs to Deliver Better Outcomes

n.a.

How openness facilitates collaboration

Dr Jemeen Sreedharan talks about his personal experiences of openness (and the opposite!) and how it has led to his research flourishing. This is a series of anecdotes and associated learning experiences he has had over the years.
JUST-OS